Curious, Healing

Books about healing, business, and fun

disability

“Healing Back Pain” by John E. Sarno, MD

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Subtitle: The Mind-Body Connection

Recommended to me by: Amy Bennett

What Dr. Sarno tells his TMS patients:

  • Resume physical activity. It won’t hurt you.
  • Talk to your brain: tell it you won’t take it anymore.
  • Stop all physical treatments for your back—they may be blocking your recovery.

DON’T

  • Repress your anger or emotions—they can give you a pain in the back.
  • Think of yourself as being injured. Psychological conditioning contributes to ongoing back pain.
  • Be intimidated by back pain. You have the power to overcome it.

Dr. Sarno defines Tension Myositis Syndrome (TMS) as chronic pain in muscles and tendons of the back, neck, buttocks, and limbs. He asserts that most back pain is not caused by muscle strain or ruptured disks or past car accidents, but rather by the brain depriving an area of sufficient oxygen for the purpose of distraction from anger or other unpalatable emotions.

The book describes his theory and includes many case histories of people who fully recovered from debilitating pain once they understood that it was caused by repressing emotions. In Dr. Sarno’s experience, most people improve simply by achieving that understanding.

Unfortunately, the book doesn’t contain any suggestions for other ways to deal with emotions, although it does strongly imply that acknowledging them and setting clear boundaries can be helpful.

I think the mechanism is slightly different, tension and pain as a result of suppressing emotions rather than as a subconscious distraction. I still highly recommend this book for a refreshing perspective on chronic pain.

Available at bookshop.org.

“My Body Politic” by Simi Linton

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Subtitle: a memoir

Simi Linton is a Jewish woman, married, a professor and researcher with a Ph.D., who uses a wheelchair. Her memoir starts with the car crash that caused her disability and her slow physical recovery, and continues with her reemergence and engagement with a largely inaccessible world. She moves from gratitude for strangers’ help pulling her wheelchair up curbs and stairs, to the realization that the built environment should be wheelchair-accessible.

She acknowledges the privilege and family’s financial resources that allow her to pursue a college degree, and calls out the tragedy of most disabled people’s lack of access to education. She teaches for several years at a school that mainstreams disabled kids, and publishes articles about disability and society.

She paints loving, detailed word pictures of her disabled friends leading vibrant, connected lives as she describes her own relationships and career.

Highly recommended.

Available at bookshop.org.

“Coping with Trauma-Related Dissociation” by Suzette Boon, Kathy Steele, Onno van der Hart

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Subtitle: Skills training for patients and therapists

Recommended to me by: A client

This is a useful book packed full of detailed, compassionate information on dissociation. Since it is a group training manual, it is divided into short chapters meant for individual class sessions.

The authors often note that each person’s experience of dissociation and healing will be different, and techniques work for different people at different times. At the same time, there is a whiff of condescension in the training, with over-simplified explanations and implications that if you just work hard enough everything will get better. For example, improve your social skills and you won’t be isolated any more.

I’ve noticed that a feeling of loneliness can be a flashback to earlier isolation. This is the first book where I’ve seen that mentioned. The main suggested tools for healing are empathic observation, finding common ground among dissociative parts, taking small steps, and creating internal safety. There are several creative visualization exercises, for example visiting a store that is perfectly comfortable for you and where you can pick up anything you need to feel safer, for free.

I recommend this book for people who experience and/or work with dissociation. At more than 400 pages, it’s a good book to read gradually or dip into for ideas.

Available at bookshop.org.

“The Trauma Spectrum” by Robert Scaer

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Subtitle: Hidden Wounds and Human Resiliency

This book is a frustrating mix of interesting theories, solid information, and bigoted rants.

The author leads with some encouraging words about intersectionality and noticing how society’s defaults harm some people, but then devolves into “women returning to work after childbirth causes harm because babies need maternal care” and “fast-food advertising causes harm because traumatized morbidly obese people get triggered into eating even more.”

I am pro infants receiving attuned care and against subliminal advertising for any product, but his conclusions on these topics lack validity as well as compassion. Infants can receive attuned care from many people, not just the mother. Fat people don’t necessarily eat more than thin people.

There is also a lot of matter-of-fact reporting on cruel animal experiments. Perhaps some animal experiments are necessary, but we can at least regret the harm they do.

On the interesting side, keeping me from just discarding the book, he notices that his clients with whiplash show trauma symptoms and are helped by Somatic Experiencing and other trauma-resolution therapies. That sounds obvious when I type it out, but we think of whiplash as a soft-tissue injury (muscles and tendons) rather than a nervous system injury. He notes that severe whiplash in response to relatively minor motor vehicle crashes correlates with a past history of trauma.

He also talks about nervous system kindling, or neurosensitization, where the sympathetic and parasympathetic nervous systems are out of balance and internal triggering keeps them out of balance. This explains, among other things, Multiple Chemical Sensitivity.

He speculates that fibromyalgia correlates with preverbal trauma, and disregulation of the nervous system.

He talks a lot about the structures in the brain that process trauma, and about the sense of being frozen in time that accompanies PTSD. Approach/avoidance dilemmas (double binds) are an obvious source of trauma. He talks about conditioning and trauma-based learning, and the need to extinguish the connections that get created during trauma to be able to come back into the present.

Robert Scaer has worked with many patients in his career and made careful observations along the way. Unfortunately he mixes them in with his personal biases in this book, so it reads more like someone’s personal blog than a trustworthy scholarly work.

Available at bookshop.org.

“Waking” by Matthew Sanford

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Subtitle: A memoir of trauma and transcendence

Matt was paralyzed from the chest down at the age of 13 in a winter car crash that also killed his father and older sister. His book chronicles the numbness and dissociation that help him survive his first months and years of recovery, and his later reconnection with his body. The book includes the beautifully functional family relationships that helped sustain him.

The doctors tell him he cannot connect with his legs past his spinal injury. Even though the flesh is connected, with blood circulating in and out of the paralyzed areas, they tell him the energy he senses is just in his imagination, denial, wishful thinking.

He remembers his father doing yoga alone in the basement long before it became popularly accepted in the US. He finds a yoga teacher, Jo Zukovich, with the intuition and imagination to work with him and begins reconnecting with his body. Along the way he experiences the flashbacks and body memories of healing trauma.

He and Jo discover that “alignment and precision increase mind-body integration regardless of paralysis.” Matt writes,

“If I listen inwardly to my whole experience (both my mind’s and my body’s), my mind can feel into my legs. […] It is simply a matter of learning to listen to a different level of presence, to realizing that the silence within my paralysis is not loss. In fact, it is both awake and alive. […] The silence that helped me leave my body and protected me from pain in intensive care is the same silence that helps me energetically connect mind and body.”

Highly recommended for a clear, honest look at trauma, recovery, and living well with disabilities. Prepare to have your unconscious stereotypes about “poor, wheelchair-bound” paraplegics decisively shattered.

Available at bookshop.org.

“Marbles: Mania, Depression, Michelangelo, and Me: A Graphic Memoir” by Ellen Forney

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The story and drawings quickly engaged me, despite the author’s sometimes bizarre, sometimes heavy journey through mania, depression, and eventually, balance. She has the fantastic support of her mom, friends, and psychiatrist, but still struggles for years before finding a set of meds that works for her.

In depression, she can barely get out of bed to sit under a blanket on the couch. At the same time, she still swims several times a week, goes to yoga, and draws her weekly comic strip. In mania, she struggles to control her racing thoughts and impulses. Her commitment to self-care is woven through the book, along with disarming candor about her daily experience.

Highly recommended to learn about one woman’s experience with bipolar disorder and creativity.

Available at bookshop.org.