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Curious, Healing

Curious, Healing

Books about healing, business, and fun

  • About Sonia Connolly

disability

“Somebody I Used to Know” by Wendy Mitchell

March 3, 2025 by Sonia Connolly Leave a Comment

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Subtitle: A Memoir
Recommended to me by: a friend

Wendy Mitchell is a vibrant, strong, smart woman, proud of her memory, her home renovations, and her two now-adult daughters whom she raised on her own. At age 57, she starts to feel fatigued and confused, and falls unexpectedly several times while running.

She has what appears to be a small stroke, and is diagnosed with early-onset Alzheimer’s soon afterward at age 58. She is determined to remain independent as long as possible and uses multiple alarms on her iPad throughout her day to remind her to do tasks like make food, and then eat the food she made.

After being forced to retire from her beloved NHS job for ill health, she becomes an activist for people with dementia, participating in research and giving talks on her experience. She has to write out her talks in advance, map out her travels by public transit, and print photos of where she’ll be staying.

The book is absorbing on the level of getting to know Wendy and her story, as well as on the level of learning more about the effects of Alzheimer’s and how to live well after being diagnosed.

Highly recommended.

She wrote two books after this one and kept a blog, Which Me Am I Today.

Available at bookshop.org.

Filed Under: nonfiction Tagged With: aging, disability, memoir, psychology, survival story

“Afterglow: Climate Fiction for Future Ancestors” edited by Grist

March 30, 2024 by Sonia Connolly Leave a Comment

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Grist is a non-profit news organization that reports on climate change with a focus on equity. They run an annual short-story contest called Imagine 2200 and publish the winning and runner-up stories. This is the 2021 collection. The stories are available on Grist’s website

Many of the stories create a plausible future world that includes disaster and moves beyond it to show thriving and surviving communities. The stories are written by diverse authors and include characters from a variety of cultures, with a variety of skin colors, sexual orientations, genders, and abilities or disabilities. These futures include us all.

I had read Marissa Lingen’s story A Worm to the Wise before, and was happy to see it again. The other stories and authors were new to me, and I liked almost all of them. One of them made me cry, in a good way.

The stories all include some kind of hope, and they all include grief for what is lost. This is not “lalala we can ignore climate change,” but “let’s talk about how we can learn new skills and change our priorities so we can survive and thrive.” Recommended.

Available at bookshop.org.

Filed Under: fiction Tagged With: activism, disability, fun, lgbt, science fiction

“The Fire Trail” by Maureen Larkin Ustenci

June 4, 2023 by Sonia Connolly Leave a Comment

book cover
Subtitle: A Mother’s Journey Through Grieving

Recommended to me by: the author

Maureen Larkin Ustenci lucidly shares the raw shock and shattering grief of losing her beloved only son to sudden death in a mountain lake just after he graduated from high school. She also shares joyful stories of raising him in multicultural Berkeley with her Turkish husband. This is a love letter to her son Efejon, to her husband Mustafa, to the city of Berkeley, and to the community that surrounded them and bore them up in their terrible grief.

The book moved me to tears and also delighted me with its depiction of family members, friends, traveling in Turkey, and raising a child who never stopped talking. It dips into the depths and rises again, acknowledging both unbearable pain and the people who reached out again and again to help them bear it with kindness, generosity, and warmth.

Available at Amazon.

Filed Under: nonfiction Tagged With: disability, memoir, spirituality, survival story, trauma

“Unmasking Autism” by Devon Price, PhD

January 10, 2023 by Sonia Connolly 2 Comments

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Recommended to me by: Sam Livingston-Gray

Devon Price, PhD, is a social psychologist, professor, author, trans person, and proud Autistic person.

The book starts out stiff and academic and a little defensive, citing a lot of facts and figures about being autistic. Gradually it warms up as it describes different people’s experiences with unmasking. The last chapter is a joyful exploration of how we can move toward an inclusive and accessible world for all neurodiverse people, including queer and trans folks and people of color. The book itself is a demonstration of unmasking.

Autism is a developmental disability that runs in families and appears to be largely genetically determined. Autistic brains have more interconnections in some areas than allistic (non-autistic) brains, and fewer in others. Autistic people tend to focus on small details rather than the big picture. Rather than adapting to ongoing stimuli (like an annoying sound), autistic brains find it more and more annoying.

Devon Price discusses other diagnoses that overlap with autism, such as ADHD, PTSD, and being “highly sensitive.” Autism is a cognitive and sensory difference that affects every area of life. People can have sub-clinical autism, not severe enough to be diagnosed, but still benefiting from unmasking and accommodations. Self-diagnosis is an option when formal diagnosis is financially or logistically out of reach.

Formal diagnosis of autism is slanted toward the characteristics of well-to-do white boys, because that was the population under study when the diagnostic criteria were developed. Autistic girls learn more social and masking skills because of the ways girls are given less leeway to be disruptive than boys. Black and brown autistic people have even less leeway and are likely to be seen as criminal rather than disabled at a very young age.

The distinction between “high functioning” and “low functioning” autism is called out as an artifact of Hans Aspergers’ eugenicist and fascist beliefs.

Substance use can be self-medication for sensory overwhelm and despair, and an attempt to facilitate social interactions. When there is less need for masking, there is less need for substance overuse.

The book includes exercises to discover disowned behaviors and the masks that compensate for them. Once autism is fully acknowledged, it becomes possible to choose activities and accommodations that fit better.

Recommended to learn more about autism and the ways autistic people struggle to meet neurotypical expectations. Also recommended for the encouragement to listen to our own needs and build a life that works for us. Wouldn’t it be wonderful if societal resources were put toward making everyone successful by offering the support and accommodations each person needs.

Available at bookshop.org.

Filed Under: nonfiction Tagged With: disability, memoir, neurodiversity

“The ABCs of Autism Acceptance” by Sparrow Rose Jones

September 19, 2021 by Sonia Connolly 1 Comment

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Recommended to me by: AlexSeanchai

I thought the ABCs of autism acceptance would be the basic or elementary level of acceptance. Instead, this is a series of essays on topics starting with each letter of the alphabet: A for Acceptance, B for Bullying, C for (People of) Color, etc. Sparrow Rose Jones is autistic and shares some of their story through the essays.

They started the project out of rage against “autism awareness month” and the Autism Speaks organization, which ignores autistic adults and treats autistic children as a dreadful burden on their parents. Some of the essays carry that edge of fighting back against unacceptable treatment. The book advocates for acceptance, inclusion, and support, rather than awareness, othering, and neglect. “Presume competence, and provide support.” Autism is an intrinsic quality of a person, not something that can be peeled away to find the “normal” child or adult underneath.

Sparrow Rose Jones describes their own experience, and also reinforces that autistic people are not a monolith by including references to other autistic people’s viewpoints. In “E is for Empathy,” they strongly question the assumption that autistic people lack empathy, and also refer to Cynthia Kim’s essay The Empathy Conundrum where she discusses having an empathy deficiency. She distinguishes between not being able to sense someone’s emotions, while still having sympathy for their distress when she perceives it. Autistic people deserve acceptance and support whether or not they can intuit others’ emotions.

From the conclusion:

We have explored some serious and often intense topics. Autism acceptance is about seeing the beauty and living the joy of autism, but there are some very difficult aspects to the Autistic life – some inherent and many imposed on us from outside. Autism acceptance includes understanding our struggles and being compassionate toward us as we seek a better life for ourselves and others.

Highly recommended to learn about one person’s experience of being autistic and an overview of others’ experiences, including statistics about poverty, unemployment, victimization, etc.

Note: The author is now known as Maxfield Sparrow. Website: Unstrange Mind.

Available at bookshop.org.

Filed Under: nonfiction Tagged With: disability, memoir, neurodiversity, psychology

“Unraveling” by Karen Lord

June 11, 2019 by Sonia Connolly Leave a Comment

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Recommended to me by: James Davis Nicoll

A murder mystery is being unraveled by supernatural beings with human allies. Not at all my sort of thing, but it’s a followup to Redemption In Indigo so I gave it a try. Unlike that book, which started off slowly for me, this one pulled me in immediately and I read it all in one sitting.

It tackles some serious topics along with the fast-moving plot. A class system that values land owners over everyone else. Paying attention to who matters and who doesn’t. Adjusting to disability, with a lot of support.

I enjoyed the ride! Stepping back, I didn’t quite follow some of the twists and turns of causality in the plot, and I’m not sure I agree with some of the deeper implications.

Available at bookshop.org.

Filed Under: fiction Tagged With: disability, fun

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